Stephen Parkinson and I presented at the Paediatric Society Conference held in Hamilton on 25th November. We presented - 'Head & Heart: Psychological and Spiritual Issues for Children - the Quality of Being with Seriously Ill Children'. Psychological and spiritual aspects of care are often given lip service but not understood. This was explored within the presentation with the use of case studies to highlight the needs of children when living with a life-threatening illness.
We then presented at the Dunedin Psycho-Oncology conference on 27th November, the topic being - 'Transcending Suffering: the Survival of the Family'. Families living with a child with cancer have ongoing adaptions shifting focus from wellness to the intense care of illness and treatment. The quality of care can be pivotal to enhancing or hindering the process of survival and making meaning of their situation as a family. The role of the health professional in supporting children and families was explored in how to help alleviate suffering and enhance meaning for the survival of the family.
Children, young people and their families continue to teach us, inspire us and guide us in how to provide care that meets their needs. Our responsibility is to share this with other health providers so that best practice is achieved.
Cynthia Ward CEO
Cynthia's Blog
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Resiliency in Action
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Xmas Greetings 2012
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Resiliency in Evidence
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The importance of hearing from children, young people and their families
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The Wisdom of Learning from Others - 26 June 2012
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Parents the unseen heroes when caring for children with complex health needs:
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Building Resiliency in Children - 29 April 2012
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Holiday a mixed time for families - 31 January 2012
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Listening to families - 20 December 2011
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Huge generosity makes True Colours Long Lunch a great success - 7 November 2011
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Challenge to gain sufficient funding to continue service - 30 September 2011
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Staying resilient in the face of chronic illness - 31 August 2011
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Facing the challenge of Winter - 31 July 2011
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Parents expertise develops through necessity, not choice - 27 June 2011
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Children’s rights in healthcare - 30 April 2011
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“There is nothing safe about this life” - 21 March 2011
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Our hearts reach out to Christchurch - 28 February 2011
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How will we face the New Year - 31 January 2011
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Support helps team keep standing - 20 December 2010
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Long Lunch fundraiser was an awesome event - 12 November 2010
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We all want our voice heard - 30 September 2010
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“Making sense gives meaning to the experience” - 30 August 2010
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“Seen, heard and understood” - 12 July 2010
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Extra vigilance is exhausting for parents - 3 June 2010
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Illness and loss have huge impact on team - 26 April 2010
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“The greatest treasure” - 22 March 2010
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Children require honesty - 9 March 2010
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The many friends of True Colours - 20 February 2010
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Committed to best practice - 2 February 2010
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Therapeutic space complete thanks to Paul Newman Own Foundation - 25 January 2010



