As I continue to think about what is important for children and young people particularly in regard to serious illness I endeavour to stay within the philosophy of True Colours which is ‘listening to the voice of children and young people honouring their rights and wishes’.
This guides my own personal practice of making a difference for those who live with serious illness. With this in mind I look for the opportunities to improve quality of life for children and young people.
I am currently part of a steering group for the ‘Youth Transition from Paediatric to Adult Care Project’. Andrea Mockford is the Project Manager for this group (
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) which is committed to establishing best practice standards for young people who live with chronic and long-term conditions for their transition process from paediatric care to adult care.
There is much evidence that supports the need for a model of care that allows a staged transition process over several years. The objectives of this model of care will be:
* To improve the health and well-being for young people between the age of 12-24 yrs
* Improve planning for adult services
* Reduce the admission into secondary health care
* Enhance quality of service delivery
(Project Initiation Document WDHB August 2009)
The project will develop a pathway for young people into adult care that diminishes some of the anxieties and concerns that young people, their families and the health professionals encounter currently.
The current guideline is for the model to be signed off for implantation by WDHB by end of June 2010. There will be much communication with young people, their families and health providers within community and hospital to ensure the young person’s needs are being met. If you would like to know more about this project don’t hesitate to contact myself or Andrea. We are committed to best practice outcomes to enhance quality of care.
Cynthia Ward CEO
Cynthia's Blog
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Resiliency in Action
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Xmas Greetings 2012
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Resiliency in Evidence
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The importance of hearing from children, young people and their families
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The Wisdom of Learning from Others - 26 June 2012
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Parents the unseen heroes when caring for children with complex health needs:
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Building Resiliency in Children - 29 April 2012
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Holiday a mixed time for families - 31 January 2012
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Listening to families - 20 December 2011
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Huge generosity makes True Colours Long Lunch a great success - 7 November 2011
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Challenge to gain sufficient funding to continue service - 30 September 2011
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Staying resilient in the face of chronic illness - 31 August 2011
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Facing the challenge of Winter - 31 July 2011
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Parents expertise develops through necessity, not choice - 27 June 2011
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Children’s rights in healthcare - 30 April 2011
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“There is nothing safe about this life” - 21 March 2011
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Our hearts reach out to Christchurch - 28 February 2011
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How will we face the New Year - 31 January 2011
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Support helps team keep standing - 20 December 2010
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Long Lunch fundraiser was an awesome event - 12 November 2010
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We all want our voice heard - 30 September 2010
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“Making sense gives meaning to the experience” - 30 August 2010
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“Seen, heard and understood” - 12 July 2010
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Extra vigilance is exhausting for parents - 3 June 2010
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Illness and loss have huge impact on team - 26 April 2010
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“The greatest treasure” - 22 March 2010
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Children require honesty - 9 March 2010
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The many friends of True Colours - 20 February 2010
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Committed to best practice - 2 February 2010
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Therapeutic space complete thanks to Paul Newman Own Foundation - 25 January 2010



