People leave permanent imprints on our lives, each individual has value, and in the process of caring for sick children and their families I marry the understanding of my own experiences with those of the people I care for. This enriches my vision of all that is difficult and all that is worthwhile in life.
"Don't forget me" is something I have had more than one child say to me as they strive to make meaning of their shortened or limited lives. This could well be the mantra of us all as we want to leave behind us a legacy so that others will have no doubt as to what our purpose was in making a difference in this life time. To have the memory of our lives left strongly in some way opens the door to the very fact that this life is important, has meaning and has a purpose. Life is not futile.... there is hope and we are able to continue with our aspirations and dreams with expectation that all we hope to achieve will become fulfilled.
All of us would like to have the voice within us heard. There are many times that we reflect on our childhood and recall the times that we were not listened to or heard. I have been conscious of my own 'unheard' child's voice as I have cared for children who live with serious illness. As this has resonated within me I have 'reached inside' to gather the impact of this and use it today in the here and now to make a strong stand for children. It has provided motivation for me to ensure that all children within my care will not be silenced, but will have the opportunity to speak, be heard and understood.
The life experiences we have continue to mould us and shape us as we take these experiences into any given situation. Whether they are experiences we remember with pleasure, or ones that sadden us, they have all helped scope the path we are on. For some of us this has led to great and exciting places, and for some of us we have found the way to be full of challenges and suffering. My own personal life experiences have led me to walk alongside those that find life challenging, and I certainly understand suffering created by illness and crisis.
We all have our own stories shaped throughout time and history. We take our dominant beliefs and practices for granted as they are specific to our own values, and from this we make our own meaning. As I listen to the many stories shared with me, I hear of overwhelming pain and suffering. As I am invited into these stories of the children and families I care for, it is with respect that I listen, recognizing the richness of the meeting of hearts in this way. When we share our moments of pain and suffering with another it is unveiling our soul to the person we are trusting to 'listen to hear'. To be the one listening is a place of highest honour, but to the one sharing it is also a rich connection of spirit. A rare moment of simplest truth.
Cynthia Ward CEO
Cynthia's Blog
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Resiliency in Action
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Xmas Greetings 2012
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Resiliency in Evidence
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The importance of hearing from children, young people and their families
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The Wisdom of Learning from Others - 26 June 2012
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Parents the unseen heroes when caring for children with complex health needs:
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Building Resiliency in Children - 29 April 2012
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Holiday a mixed time for families - 31 January 2012
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Listening to families - 20 December 2011
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Huge generosity makes True Colours Long Lunch a great success - 7 November 2011
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Challenge to gain sufficient funding to continue service - 30 September 2011
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Staying resilient in the face of chronic illness - 31 August 2011
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Facing the challenge of Winter - 31 July 2011
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Parents expertise develops through necessity, not choice - 27 June 2011
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Children’s rights in healthcare - 30 April 2011
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“There is nothing safe about this life” - 21 March 2011
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Our hearts reach out to Christchurch - 28 February 2011
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How will we face the New Year - 31 January 2011
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Support helps team keep standing - 20 December 2010
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Long Lunch fundraiser was an awesome event - 12 November 2010
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We all want our voice heard - 30 September 2010
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“Making sense gives meaning to the experience” - 30 August 2010
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“Seen, heard and understood” - 12 July 2010
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Extra vigilance is exhausting for parents - 3 June 2010
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Illness and loss have huge impact on team - 26 April 2010
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“The greatest treasure” - 22 March 2010
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Children require honesty - 9 March 2010
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The many friends of True Colours - 20 February 2010
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Committed to best practice - 2 February 2010
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Therapeutic space complete thanks to Paul Newman Own Foundation - 25 January 2010



