It feels good to return to True Colours after having a break for two weeks and to feel refreshed. Although the weather wasn't favourable to getting outside and doing things, it actually enforced a stop and 'rest time'.
So for me it was spending quality time with family and friends, which meant good company, red wine, food, music, walking and reading a great book to replenish the soul and body!
Inmeeting with families on my return to work, there have been many comments made on how relaxed they feel due to not having to rush to appointments or to keep to timeframes of school and child care. While at times there seems to be some cynicism regarding the country coming to a stop at the end of the year, there are certainly some benefits to it!
But illness and grief do not stop just because there is a holiday, and I am mindful of that. When living with serious illness, it is so much more challenging to be able to take time for self-care so that you can refuel to keep doing what needs to be done.
I recognise that feelings of grief and loss are actually compounded at holiday time as we miss loved ones who are no longer here. It is a tenuous balance of remembering, and feeling the closeness of the person's memories and spirit close to us, and the pain of the loss. I know for myself the experience of managing those two aspects of grief.
At the beginning of each year there appears to be a 'hope' that this New Year will bring experiences that are richer and less challenging than the previous year.
My hope for True Colours is that as a team we will deliver a model of care to families in partnership that honour and meet their needs. As I look at my vision for the year ahead for the organisation, it is to deliver a high standard of care, empowering families on their journey regarding health and grief and to walk alongside families so that this journey does not feel so alone.
This year our biennial survey will go out again, and it will be important for our organisation to hear from the families we support as well as the stakeholders who work with True Colours. Our philosophy is to 'listen to hear' what is important so that our service delivers care that makes a positive difference.
"Not all of us can do great things. But we can do small things with great love."
¯ Mother Teresa
Cynthia Ward CEO
Cynthia's Blog
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Resiliency in Action
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Xmas Greetings 2012
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Resiliency in Evidence
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The importance of hearing from children, young people and their families
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The Wisdom of Learning from Others - 26 June 2012
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Parents the unseen heroes when caring for children with complex health needs:
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Building Resiliency in Children - 29 April 2012
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Holiday a mixed time for families - 31 January 2012
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Listening to families - 20 December 2011
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Huge generosity makes True Colours Long Lunch a great success - 7 November 2011
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Challenge to gain sufficient funding to continue service - 30 September 2011
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Staying resilient in the face of chronic illness - 31 August 2011
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Facing the challenge of Winter - 31 July 2011
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Parents expertise develops through necessity, not choice - 27 June 2011
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Children’s rights in healthcare - 30 April 2011
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“There is nothing safe about this life” - 21 March 2011
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Our hearts reach out to Christchurch - 28 February 2011
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How will we face the New Year - 31 January 2011
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Support helps team keep standing - 20 December 2010
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Long Lunch fundraiser was an awesome event - 12 November 2010
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We all want our voice heard - 30 September 2010
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“Making sense gives meaning to the experience” - 30 August 2010
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“Seen, heard and understood” - 12 July 2010
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Extra vigilance is exhausting for parents - 3 June 2010
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Illness and loss have huge impact on team - 26 April 2010
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“The greatest treasure” - 22 March 2010
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Children require honesty - 9 March 2010
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The many friends of True Colours - 20 February 2010
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Committed to best practice - 2 February 2010
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Therapeutic space complete thanks to Paul Newman Own Foundation - 25 January 2010



