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Demi's story

Demi's story

December 19th 2022 Our journey started back in August 2019 when our then 16-week-old baby Demi was diagnosed with Bilateral Retinoblastoma (to put simply, cancer of the eyes). My husband Luke had read a Stuff article a Read more

Mason Cowen | High Risk Neuroblastoma

Mason Cowen | High Risk Neuroblastoma

May 9th 2020 I remember the day vividly. I don’t think I’ll ever forget it. Mason was only 18 months old. I took him to the doctors early in the morning, he didn’t have any symptoms but my mother’s Read more

International Bereaved Mother’s Day | A Mother’s Story

International Bereaved Mother’s Day | A Mother’s Story

May 3rd 2020 It’s 4.30am, and I don’t know what the time was when I woke up, but I’ve given up trying to get back to sleep – nothing new there! I’m now sitting at the kitchen bench, wrapped in my Read more

Charlotte Smith | Living with a rare condition

Charlotte Smith | Living with a rare condition

February 28th 2020 Six year old Charlotte is a total diva. She loves fashion, dancing and wants to be a popstar when she grows up. She is super affectionate and so incredibly smart and intuitive beyond her years. Read more

Mitchell Law | Neuro-Degenerative Disorder

Mitchell Law | Neuro-Degenerative Disorder

December 4th 2019 After a normal pregnancy, our world was completely turned upside down 36 hours after our son Mitchell was born. We were urgently transferred to Waikato Hospital NICU, as Mitchell was having blue Read more

Jessica Lipsey | Type 1 Diabetes

Jessica Lipsey | Type 1 Diabetes

July 11th 2019 Jessica was 3 months off her 6th birthday when her life turned upside down. All of a sudden our little girl lost a lot of weight, was having terrible mood swings and was drinking gallons of water. Read more

Jacob Bell | Brain Tumour

Jacob Bell | Brain Tumour

February 28th 2019 What started out as a series of bad headaches for seven year old Jacob Bell, turned out to be the warning sign for a far more serious diagnosis. As the severity of Jacobs headache increased and his Read more

Dominic Edgecombe | A long road to diagnosis

Dominic Edgecombe | A long road to diagnosis

June 10th 2018 Four year old Dominic Edgecombe’s favourite food is salmon. Raw or cooked he doesn’t mind. For his Mum Karena watching her son enjoying his food is something she will never take for granted, as Read more

Hadleigh’s Story | Medically Fragile Child

Hadleigh’s Story | Medically Fragile Child

February 20th 2018 When Hadleigh was born three months early we had no real idea what life was going to be like. Everyone told us stories of their uncle’s next-door neighbour who grew to six foot six and could Read more

The Foot Family | Walking alongside parents

The Foot Family | Walking alongside parents

May 29th 2017 It’s a simple wish as a parent, to have happy healthy children. However for some parents this wish sadly doesn’t come true. For some they will receive the devastating news that their child h Read more

Connie and Alex | Severe Gastric Reflux

Connie and Alex | Severe Gastric Reflux

May 31st 2016 At 37 weeks, Alex arrived happy and healthy at Waikato Hospital. But just hours after they were transferred to River Ridge East Birth Centre, Alex developed breathing problems and was admitted to Read more

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